Yesterday was World Lupus Day, and Erin Kotecki Vest sent out a tweet yesterday pointing over to a site where you can pick up a #SUCKIT Lupus sticker. Contribuite to the cause, and send an email off to Alexandra and she’ll send you a sticker.
All the details are here.
I have mixed feelings today. My emotions are all over the place for a variety of reasons, not the least of which is I am making progress in my fight.
But with that progress have come so many casualties I feel like I would have rather of lost more organs or had another stroke. Celebrating seems out-of-place when so many around me are hurting from the wake that Lupus has left.
Don’t get me wrong, we will celebrate eventually. It’s just not time yet. I’m only beginning to feel better. beginning to be stable for more than a month here or a week there. Celebrations seem to be for people who have this shit so far,far past them they can’t even manage to see it in their rear view mirror, the lights faded into the darkness. So far past them it’s turned off some other road or path, leaving Lupus far, far behind and lost on the side of some unmarked road, hidden and tucked away behind some trees and bushes.
It’s more like we’re still working hard to stay ahead of Lupus while it revvs it’s engine, ominously, reminding us all it’s there and ready to slam it’s foot on the gas and flatten us from behind.
Yet we keep steadily pulling ahead. And it keeps steadily falling further back. Slowly. So slowly.